Ulcerative Colitis

I suffer from a chronic autoimmune disorder called Ulcerative Colitis it causes inflammation of the lower intestines. Stress is likely the biggest trigger that I have but I need to keep a detailed food diary to try and track my symptoms moving forward and hopefully find out what sort of food triggers the condition so that I can avoid this outcome.



I lost nearly thirty pounds this flare up which is a considerable amount of weight. Only another 30 pounds to go till I am no longer "overweight" by BMI...

The goal is to not end up in the hospital, the plan to do that next time I have a flare up is to immediately contact my GI doctor when the symptoms start and engage all of my medical professionals the moment I have something like this happen. I waited nearly 2 weeks trying to fix it myself before I contacted the GI doctors after I tried to check into the hospital. Then I had a four day wait for an appointment with my GI doctors and then another week before I had my Flex Sigmoidoscopy (a baby colonoscopy) and the doctor realized that I need to be admitted for my inflammation.

Another strange thing that I heard this time was that I "looked to good" to be really ill, I was showering twice a day and trying to stay as clean and presentable as possible; I wonder if that kept me out of the Hospital. I am not going to try to look rougher to get admitted sooner but I am going to protest when I hear "but you look good" from a doctor. Dinner should be here soon, I got moved to a low residue diet which is a last step before they release you back into the wild.

Comments

Post a Comment

Popular posts from this blog

The Brandywine Creek in Wilmington

Image
This is a photo of the Washington Street bridge and the Brandywine Creek in downtown Wilmington Delaware. I went down to the creek to shoot a youtube video, and I was successful in that but I did realize that I cannot just go and wing these walk and talks. I need to come up with a plan and then execute it I only managed to get a 2:45 video out of a hour long walk and at least 20 mins of raw footage. I am starting to get better at the filming portion of the skill but I still need to pause more between expressed ideas I talk at about the right speed maybe I could get a hair faster, but I need to figure out how to have a coherent topic and perhaps even a structure to the discussion. Hopefully, by this time next year an hour long walk will make at least a ten minute video.
Read more

Whoa Ulcerative Colitis post!

Image
So yeah I got hospitalized again (last time was three years ago) for my Ulcerative Colitis in November which isn't how I want to spend a week in the busiest time of year for the liquor industry. I started to have my flare up when my parents came to visit, in October and I barely kept it together for the month that it took me to check all the boxes to get admitted to the hospital. Though at least now I know how it needs to proceed in case this ever happens again. The moment I start to think that it is a real flare up I need to start making appointments with the GI doctor and not think that if I control my diet I can get back to something like normalcy. I ended up on a new biological medication remicade which is shockingly expensive but thankfully I have real cadillac insurance through work so I am okay with the fact that each dose of my medication is twenty thousand dollars and I need six doses a year, hopefully with the repeal of the ACA I won't end up on a plan with a lif...
Read more

German Riesling

Image
German Riesling is my favorite white wine, I will always have a spot in my heart for white burgundy but I can afford to drink much more prestigious vineyard sites from more prestigious winemakers. That and that an off dry lower alcohol wine is conducive to getting up earlier in the morning and having a life outside of work (I close the liquor store I work at). In this video I talk about the german ripeness classifications that appear on wine bottles. There are two broad categories (qualitatswein, and pradikatswein) qualitatswein is wine where sugar can be added to the unfermented grape juice to increase potential alcohol, and pradikatswein cannot have added sugar. There are great examples from both categories of wine.
Read more